Our 4bush Adventures: Mia is 2 months!

My sweet Mia is 2 months old today! I can't believe how fast time has flown by. First, let's talk about how well her back has healed! You can't even really tell that the scar goes up to almost the middle of her back. The body is amazing isn't it? The way it repairs itself is quite a miracle.

Snuggles with daddy are the best

This month has been tough for Mia in a different way. She got sick with the cold. Let me tell you, having a baby this young get sick with the cold is NO JOKE. We have been either in the doctor's office, the E.R or the Respiratory Clinic, almost every day for the past week.

On Sunday (our actual anniversary date), I stayed home with Mia while Heath and Bret went to church. Well, Mia kept coughing and coughing and it was hard for her to breathe. Then she started foaming at the mouth. My initial thought was that it was just phlegm, but I got on the internet and it scared me. So, I called the physician on call and he told me to go to Instacare, but it was closed, so I ended up going to Urgent Care in Centerville. They checked us in, asked me what was going on and then had me wait for the physician just for her to look at this picture, and tell me that they didn't deal with babies, "especially babies with a cold that have Spina Bifida".

Let me go off on a rant here for a second...
This is not the first time we've been sent to Primary Children's E.R because Mia has Spina Bifida and the doctors don't know what to do with her, despite the fact that what she has doesn't have anything to do with Spina Bifida. IT'S A COLD PEOPLE! Just suck out her boogers and stop wasting our time! How do they not have the equipment to care for babies? Why do they always use her Spina Bifida as an excuse?
Did you know I went to 3 different pediatricians when she came out of the NICU and called 3 other ones before I found one that was "comfortable" caring for Mia?! She's a BABY!!
I realize that her Spina Bifida does make her a bit different because she has more "needs", but honestly, sometimes it makes me think that the doctors out there don't know what they're talking about. What did they do at Med school?!
Some of my annoyance towards all these doctors that have turned us away because Mia has SB has almost disappeared after talking to a resident during Mia's clinic last month, he said that maybe the reason why they are that way is that they don't get a lot of babies like mine and so they aren't as comfortable with that because they haven't had practice treating them. Well, that kind of made me feel better...But this urgent care visit made me feel annoyed again.
Ok. Rant over.

So, I go get Heath, and Bret's grandpa comes over to pick Bret up, and Heath, Mia and I head over to Primary Children's E.R.
On our way there Heath said, "You know, if we have to come here any more times, we're going to start making friends there."

and guess what?!

WE DID!!!

As we were checking Mia in, I saw another couple that had a car-bed just like the one Mia went home with. I though, I bet their baby has Spina Bifida. When the nurse asked me if Mia had Spina Bifida I said, yes and the couple overheard and they turned and looked at me. I KNEW IT! Heath took over talking to the check-in nurse and I headed over to talk to that couple.

Me: Does your baby have Spina Bifida?!
Them: YES! Yours does too right?!
Me: YEAH!! Oh my gosh! Can I give you a hug?!*

*I know that's weird, but it just felt so good to see another couple with a baby like ours. I felt like we were kindred spirits. We understood one another and I understood the worries they were going through. It just feels good to know --in the flesh-- that there are more of us out there.

Their daughter has a lesion similar to Mia's and they had just gone home. Their daughter was 10 days old and she started leaking spinal fluid from her back. That's why they were back. I felt for them. Honestly, the healing process is really stressful. We exchanged phone numbers and I gave them the links to the facebook support groups (because you really do need support in times like these) and we parted ways. It was really nice to meet them. Oh and she did let me give her a hug :)

The rest of the E.R visit went like this,
-Nurse comes in, takes vitals and asks us what's going on (10 min)
-Wait (30 minutes)
-Repeat the same information to 10 different people (1+ hours)
- I was right, the foam was just phlegm. So, they suction her out (less than 5 minutes)
-Getting discharged (30 minutes)

RIDICOULOUS! Right?!

I want one of those suction machines at home so I can just do it and we don't have to waste time driving, or at the doctor's for her to be able to breathe properly.

We got a prescription to the respiratory clinic. On Monday we went to her pediatrician to be suctioned and then at 2 in the morning, she couldn't breathe super well so I went to the Primary Children's respiratory clinic for her to be suctioned. She's doing a TON better! She can actually cough without throwing up, or turning super purple. YAY!

Okay, now here's what you've been waiting for, pictures of my baby girl!